There is an ongoing discussion in the diabetes community about complications, and I think our conversation needs to change dramatically.
Last night I popped in to the #dcde chat about complications, and I was utterly shocked at the way the conversation was being steered.
I feel like this blog post may bring on a firestorm, but the conversation was hijacked by a follower of Dr. Bernstein. I will be the first to say that I have nothing against anyone's personal choices in how they manage their diabetes, or in how they choose to eat. I think if you choose to follow Dr. Bernstein's advice, all power to you. However, there is always a line that can be crossed when you are discussing your personal treatment choices. When that line is crossed in a conversation about complications, I want to spit fire.
The discussion section I caught was in regards to neuropathy. I caught a Dr. Bernstein (self proclaimed in her twitter profile) groupie claim that people who follow the low-carb diet have successfully reversed neuropathy. I thought this was 1) outrageous and 2) just another way for people who feel they know better than anyone else can shame people living with complications.
I can not stand the smug air of superiority when people claim that one exact lifestyle choice is a blanket cure for anything, so naturally I questioned someone using twitter as @thediabetesdoc. He claims to be a doctor, so I asked for clarification of this claim. Naturally, no answer was given. I do believe he is a doctor, but I wish that he would come down solid on the clarification of language.
So, being the person I am, I sleuthed a bit on the Internet for actual scientific articles about reversal of neuropathy.
Here is a link to scholarly articles about "reversing" diabetic neuropathy.
There was no article that said that you can totally reverse neuropathy. Everything I found the symptoms are alleviated with tighter control, and sometimes some people choose a low carb lifestyle in combination with their insulin regimen to achieve these goals. However, there's always a caveat, it's never that simple. You can't just put down the carbs and magically have healed nerves. The same way you can't just put down the sugar and reverse your diabetes.
These conversations revolving around complications need to be more delicate. I fear that this mother may feel an epic downfall if her child, who she has put on the Dr. Bernstein diet, maybe one day will have neuropathy despite best efforts. Unfortunately, this disease is a beast. It happens, I wish it wouldn't. I will fight for it to not be that way for anyone. We need to have a broader conversation about this. We need to be able to comfortably open up about our experiences and not fear a member of our very own community tries to one up us with information that is available to everyone.
I can't tolerate it any more.