Sunday, February 16, 2014

On Community and Advocacy

It's been a weird few months for me.

I took a step back from my blog for a few reasons, 1) I wasn't getting readership, so I continued to keep my private journal. 2) I wanted to step back and re-evaluate what I am doing for diabetes advocacy so I can focus my attentions and not feel stretched too thin.

This community we have, it is so diverse, and spread out, and there are just so many amazing things that the online community is doing, as well as members of the community at large. Then we take in to account the amazing organizations that are doing movements, and advocates that are taking on corporations and government agencies just to get what we deserve as people living with chronic illness...and so much more. We truly are a powerful bunch of people, and the time I took away from everything really made me realize that.

I want to be a part of this, but I want to have a strong voice. I want to make sure that I can stay focused and be able to help and guide people who may need it. That's why I have chosen to continue to blog. I hope someone...anyone finds this and feels that they are a little less alone. I will focus myself on new research and technology news and how it may affect you and I, the people who are affected by diabetes day in and day out in some way.

So I may not blog about the absolutely amazing things some other people are doing like the recent Spare a Rose Campaign. I support it, I support what it is doing and I think my fellow bloggers have done astonishing things. Raising more than $20,000 for children with diabetes is incredibly difficult and without the hard work of grassroots advocates it couldn't have been done.

I may not blog about people who make jokes about Diabetes like Melissa did in SUCH a poignant way, but it doesn't mean that I don't fully support what she says, and it certainly doesn't mean that I won't file a complaint against a local radio station for making crude jokes at the expense of people living with diabetes.

I may not write long entries about people like Kris Freeman at the Olympics and how the hell does he wear is Omnipod there though really? But I am thinking about it.

I will continue to blog about research, fund raising and telling my story so others know they aren't alone. I will always shape my story for people who may not understand what living with diabetes is like. I will always do my best to put my fundraising efforts and my awareness power where it needs to be.

We can't be everything all the time as advocates. That leads to advocacy burnout, which can be hard.  Finding our voices and using them at the right time is just as important as being a part of this amazing, supportive and fantastic community.

1 comment:

  1. I can completely respect what you're saying and how you choose to participate. It's a tough call, sometimes -- does not writing in support of Spare-a-Rose mean you're against it? The answer is no, and quite honestly, after reading the 80th article about it, it tends to lose its effectiveness. So write about what's important to you, and about the message you feel is not being emphasized enough. You're doing just fine.

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