Friday, August 30, 2013

One-Arming the Northumberland Strait

On August 28, 2013 a wonderful Type One advocate did something pretty darn amazing. She swam for 10 straight hours across the Northumberland Strait. The Strait is a connection of Atlantic Ocean between the provinces of New Brunswick and PEI. Pretty amazing, right?

It gets better, she did it using only one arm.

Jen Alexander is no stranger to diabetes or marathon swimming. I first met her when she came to Camp Lion Maxwell, that I was the leadership director at, to speak to the kids about setting and achieving goals, exercising with diabetes etc. She is extremely passionate about diabetes knowledge, exercise and I think her dedication to Marathon Swimming is a pretty great example of that. Jen has been living with T1 for 25 years and pumping for 10. In 2008 she won Diabetes Exercise and Sports Association "Athlete of the Year" award. Since the age of 5 she has been passionate about swimming, in 2005 she swam the Northumberland Strait, and in 2006 she attempted to swim across the English Channel.

Below is Jen's recounting of what was going through her mind and how she did what she did.

Jen getting ready for her swim.

2013-08-28 Swim Report: 10 hours, 42 minutes -- One-Arming the Northumberland Strait

29 August 2013 at 23:47
Official swim time: 10 hours, 42 minutes
Average blood sugar: 6.3 (113).  High of 10.7 (193), low of 3.8 (68)
Intake: 500 grams of carbs

This is a really long account of my day. :-)  I've created the following headings to make it more skim-able. :-)


1. Shoulder Problems/Stupid Diabetes
2. Swimming With One Arm
3. Picking the Day
4. The Start of the Swim
5. Diabetes and The Rules
6. Feeling Needy...
7. Feeling Loved...
8. Then It Got Rough(er)
9. Nature's Ultimatum: Tide vs Geography
10. The Dark Shape Beneath Me
11. The Difficulties
12. Almost There?
13. Did I Fail?
14. My Amazing Diabetes Control


Thank you so much for supporting me, everyone!  Thanks also to Abbott Diabetes Care, who has sponsored every single marathon swim of mine, and who could not be more caring or supportive.  (I really do believe they make the best blood glucose meter on the market -- if you need a blood glucose meter, you might want to read up on it!)

----------------------------------------------------------------------------

1.  Shoulder Problems/Stupid Diabetes
Frozen Shoulder, or adhesive capsulitis, is a bit of a wicked condition.  No one knows what causes it, but it's known to affect women more than men, and the risk increases the longer you've had Type 1 (aka juvenille) Diabetes.  (Type 1 Diabetes is the autoimmune-ass-kicking kind that has nothing to do with activity levels or diet.  I'm celebrating my 25th year with Type 1 Diabetes this year.)  Frozen shoulder affects 2% of the population over 50 years of age, but at least 20% of people with diabetes.  (Remarkably, one study found no correlation between the previous five years of diabetes control and the diagnosis of frozen shoulder.)  I developed frozen shoulder in both shoulders: lefty in April 2009, and righty in June 2010.

Frozen Shoulder has three phases: freezing, frozen, and thawing.  In freezing, the shoulder capsule starts contracting.  Shoulder range decreases dramatically.  When I became fully frozen, I couldn't lift my arms above my shoulder.  I applied shampoo to my head using a spatula.  I couldn't lift my arms high enough to apply deodorant.  I couldn't sleep on either shoulder, and I couldn't even sleep on my back without pillows under my shoulders -- my shoulders didn't even have enough range to touch my bed!  I couldn't hug people.  I couldn't even bring my bow to my fiddle.  Getting dressed and bringing food to my mouth was necessary, excruciating pain.  And when I accidentally bumped my arm/shoulder or moved beyond my range, my face would flush purple with pain and I'd want to lie down and stop breathing.  The pain was *exhausting*.  As recently as December 2012, it still hurt to *walk* -- just the gentle swaying of my arms as I walked was enough to make me grit my teeth.  My threshold for pain is high, but this was prolonged pain beyond reason. These last four and a half years have been fantastically difficult.  (Frozen shoulder tends to last 6-12 months in people without diabetes, but can last up to 11 years (!!) in people with diabetes.)

I threw myself into physiotherapy wholeheartedly, completing more than 700 hours.  (More than seven hundred appointments.  That's crazy.)  My physiotherapist joked that we'd seen enough of each other to be common law partners. :)  Progress was agonizingly slow, and treatment needed to be conservative: even stretching a couple of degrees beyond the "ok" range was enough to flare my shoulders up for weeks (causing more pain and reduced range).  I stuck with it, though.  If you don't treat frozen shoulder, tendons, ligaments and nerves can become permanently contracted, and then you *never* get your range back.  I got ALL the alternate opinions: multiple physiotherapists, my family doctor, two chiropractors, a sports medicine doctor, an osteopath, an acupuncturist, and two surgeons.  This was the best treatment option for me.

I needed to swim again.  Oh yes. :-)  Swimming is my church, my mediation, my yoga, my soul, and my freedom all rolled into one.  I was willing to do the work.


2. Swimming With One Arm
I realise that the idea of swimming a marathon with one arm sounds crazy to most people.  I understand that.  But for me, when my left arm had gotten through enough pain, set backs, ice packs, flare ups, and years of physiotherapy to swim again, I felt unstoppable.  :-)  *OF COURSE* I would do a marathon swim with one arm.  It was just plain logical to me. :)  It meant reclaiming a piece of my soul.


3. Picking the Day
Planning a swim depends mostly on the weather, the wind, the tides and currents.  The tides/currents in the Northumberland Strait are strong enough to drag you 15km (9.5 miles) from where you started.  I knew I'd be substantially slower with one arm, so the tides were more important than usual.  Based on the Government of Canada's Department of Fisheries and Oceans data, I determined August 28-September 3 to be my swim window.  I had seven days to pull off this swim.

Tuesday afternoon, the wind stopped blowing.  The winds were forecast to be "light" (the least possible amount of wind) during the day on Wednesday, increasing to 15 knots in the evening.  For the three days following, the forecast called for wind warnings and gale-force winds (30 knots, 56 km/hour, 35 miles/hr).  This wind speed causes 5 meter (16 foot) waves in the open ocean.  On land, whole trees are in motion (not just the branches), and it takes effort to walk against the wind.  I was worried because winds seem to last longer at this time of the year.  Additionally, big winds cause the water to cool off more quickly than usual, which makes hypothermia more likely.  I knew I'd swim at the first day the weather looked reasonable.  We knew the wind would blow from the wrong direction on Wednesday evening, but we we expected that, if I was still swimming, we'd be close enough to shore that the wind wouldn't be a problem.

I called my boat captain, and he said the water was like glass.  We talked about my speed, and how much slower I'd be, and he suggested that the weather could change, but that it looked good for an early Wednesday start.  I am so lucky to have amazing people in my life.  I had crew who were ready to spring on a moment's notice, so we hauled up to New Brunswick Tuesday night.  (Thank you Brenda, Alyssa, Jane, and Barry!  Could not have done this without you!!)  We'd make go/no go call at 6am Wednesday morning.


4. The Start of the Swim
We showed up at a very foggy Cape Tormentine wharf at about 5:30am, and the harbour waters were flat like a pancake.  The forecast hadn't changed overnight.  My boat captain put his boat in the water, and we loaded the boat with the day's supplies.  We pulled away from the harbour, and were very quickly navigating through the thick fog.  It took longer than expected to navigate to the foot of the Confederation Bridge.

The Confederation Bridge connects New Brunswick (well, mainland Canada, really) with Canada's smallest province: Prince Edward Island (PEI).  In the 1960s, this swim was on the International Marathon Swim circuit.  The Northumberland Strait is 12.7km (7.9 miles) at its narrowest crossing.  We were aiming to complete the swim at the narrowest point of the Strait but accepted that I could land anywhere along the Island.  I'd just end of swimming a greater distance.

I checked my sugar -- an ideal 6.2 mmol/L (112 mg/dl) -- drank 30 grams of carbs, applied sunblock and vaseline, and launched myself off the back of the boat.  I was relieved to find the water temperature tolerable.  At 19.8 degrees Celsius (68 degrees Fahrenheit), the water should have felt as toasty as a blanket, but I've lost some of my acclimation not swimming for four years.  I waded out to shore, and walked until there was no water in front of me.  My official start time was 6:53am.  I waded back into the water until it was deep enough to swim, and then I started to crank. :)


5. Diabetes and The Rules
I swim according to "English Channel Rules": I've never worn a wetsuit.  I wear bathing suit in an approved fabric and style, a single bathing cap, and bit of "grease".  I also wear a MediaAlert bracelet and an insulin pump, but the Channel Swimming Association approved these deviations to keep me safe and alive. :)  My insulin pump gives me insulin every three minutes.  I have to tell it how much to give me, and I end up changing this amount repeatedly over the swim, because exercise changes insulin sensitivity.  I need insulin to survive, but I need the *right amount* of insulin to swim.  Insulin moves glucose from your blood into your cells.  Too much insulin would jam my muscles with sugar, but not leave enough sugar in my blood for my brain to function normally.  Too little insulin would prevent my cells from receiving enough energy, and cause the sugar level to build up in my blood.  At worst, if I stopped taking insulin, I'd be heading into a coma as I swam.  The tricky thing about insulin is that it takes 3-5 hours to absorb, and the absorption time can vary by 50% from one place on your body to another!  Some days, it feels like you need to be psychic to get the balance right.   (My body has stopped making insulin.  My immune system waged a bit of a war with my pancreas.  That's what Type 1 Diabetes is, and why people with Type 1 Diabetes must inject insulin to stay alive.)

At the beginning of the swim, the wind wasn't even strong enough to create waves.  I moved through the water faster than expected, and it was "test time" before I knew it.  I test my blood sugars every 30 minutes while I swim.  I need to test this often to swim safely.  My boat crew loaded two Freestyle Insulinx meters into a plastic container, along with a lancing device and a face cloth, and threw it to me on a rope.  I'd swim up to the container and test my blood sugar while I treaded water.  Under English Channel rules, I'm not allowed to get on or touch the boat.


6. Feeling Needy...
I love the Confederation Bridge -- there is something special about it to me -- but it also feels like the world's longest ruler.  :)  The 44 main piers are spaced exactly 250 meters (273 yards) apart, and it makes it painfully easy to see how much progress you are (or aren't) making.  I got a bit information-needy early in the swim.  Whenever I stopped to test/feed, I kept counting the piers to see how far I'd come.  I got a bit desperate to confirm I was making progress.


7. Feeling Loved...
The novelty of the swim wore off quickly.  Swimmers tend to go through a bit of depression between the third and seventh hours of their swim because the adrenaline from the start has worn off, and the finish is a long way off.  The weather challenged me.  The fog made everything so grey and cold!  The sky was grey, the bridge was grey and the water seemed grey.  I felt cold unexpectedly quickly, and longed to see the great big heating lamp in the sky. :)  I was only two and a half hours in, and found myself wondering if I could make it.  At one of my test/feed breaks, my first group of harbour porpoises made their appearance, and I was told I had 86 facebook notifications and a bunch of text messages.  I felt so loved!  It actually warmed me up and gave me hope.

I just kept swimming. :-)


8. Then It Got Rough(er)
I became nauseous pretty early in the swim.  Koolaid is my primary fuel source, and I couldn't find a single tub of Koolaid in Halifax!  My friend Diana and I drove around the city, hitting Walmart, Superstore Wholesalers, Superstore, Sobey's, Bulk Barn, and even Lawtons Drugstore.  The pre-mixed Koolaid Jammers were the wrong concentration (too sugary to absorb well), and the single packs used an artificial sweetener I have trouble with.  The closest we could find was a knock off made by Sobey's.  I've had trouble with knock offs before (curse, you, No Name brand!) and taking Gatorade in significant quantities makes me puke, but I didn't really have a choice.  The Sobeys brand could have been causing me trouble, or it could have been the disorientation from the fog, or it could have been the unceasing undulation...  Probably a combination of all three.

Swimming with one arm is a bit disorienting.  Swimmers will understand how I do it: it's a slowed-down one-arm fly drill, and I keep my non-working arm by my side instead of extended ahead.  (Despite doing it for nearly 11 hours yesterday, I struggle to explain it. :)  See the first two seconds of this video if you're interested: http://www.youtube.com/watch?v=2BwpI0glRdU&t=0m06s .) It means, though, that I am tilting in a couple of directions.  Picture a seesaw moving up and down which also tips on its side every time one of the ends comes up.

The waves didn't help.  Neither did the volume of liquid I was drinking.  Carbohydrate solutions absorb best at a concentration of 6-8%.  To drink my 30 grams of carbs, I was drinking 450mL (15 fluid ounces, 1.9 cups, or just under a pint) of fluid every 30 minutes.  It meant that a lot of liquid was sloshing around in my stomach.  I ended up burping *a lot*.  At first this was really embarrassing, but my crew was so supportive they actually cheered me on, saying things like "Good one!", and, "Way to go!".  Heh.  They knew the burping reduced my nausea, but you can't ask for support like that!  :-)  Eventually, we started splitting my half-hourly feeds in half and feeding every 15 minutes to reduce the volume of liquid.  It meant more stopping, though.


9. Nature's Ultimatum: Tide vs Geography
The swim quickly melted into a blur of swimming, testing, and carbing up.  I lost track of the time, and sometimes the 30 minute periods seemed to pass in no time at all.  The wind was actually pushing me toward PEI.  Excellent. :)  It wasn't directly pushing me, but it certainly helped, and it prevented the tide from dragging me too far west of the bridge.  

Over time, the wind picked up and changed direction. It stopped pushing me toward PEI blowing me, and started blowing me sideways, further and further from the nearest point of land, and potentially adding 30-50% more kilometers to the length of the swim.  The waves were getting bigger, and although we didn't know it at the time, the gale-force winds scheduled for tomorrow were coming early.  The tide was running faster than expected, and the slack tide didn't last as long as it should have.  We faced a difficult decision: I either had to fight the tide and current (swimming partially "upstream", knowing I wouldn't make as much forward progress) or I had to fight the geography, knowing that the further I got blown down the strait, the longer and longer the swim would get.  We chose to fight the tide and current.

The satellite tracking beacon (SPOT) recorded points between hours 5-9 that don't quite mesh with my experience of the swim.  It's lobster season in that area of the Strait, so lobster pot buoys were everywhere.  (We lost a bit of time navigating around them, and my boat had to leave me for a bit so the propeller wouldn't get tangled in the underwater ropes.)  Between hours 5 and 9, we passed buoys.  Everyone on my crew emphasized the progress we were making, but it doesn't look like we made much forward progress at all according to the map.  I'm not really sure how to understand this.

I certainly made progress in terms of not getting blown down the strait, but forward progress evaded us.  That can happen sometimes.  Even without wind, there are areas of the Strait where the geography causes currents that hold you in place.  I once swam for 15 minutes in the Strait (using both arms) and only moved 10 meters (11 yards).  I only started making reasonable forward progress when the tide changed direction.  (The captain joked he could have saved fuel by dropping anchor!)


10. The Dark Shape Beneath Me
The sun spent many hours trying to burn off the fog, and although there were times when you could see the outline of the sun, the sun didn't exactly shine over us during the first half of the swim.  I was cold, but the water warmed up to 21 (70) as we got closer to PEI. Eventually, the sun broke through, and burned off the fog.

As delightful as the harbour porpoises were, I wondered why they were there, and why I'd never seen them before.  My boat captain commented that he could see mackerel on his sounder, and that the porpoises were probably chasing it.  I wondered what other wildlife was in the Strait.  I've never seen anything beneath me while I've swum other than thousands of jellyfish, and crabs near shore.  There's a lot of plankton in the Strait.  Much like tiny water droplets create fog, the millions and millions of tiny organisms create a fog of their own beneath the water.  It's hard to see more than 3-4 meters down (10-13 feet).  I've felt big creatures (just seals as far as I know) move beneath me (they displace the water, and it pushes you up a bit), but I've never seen them.

As I swam along, I started noticing a dark shape beneath me.  It was there, and then not there, reappearing sporadically.  It was so far down -- was it changing shape?  I couldn't quite make it out.  A number of terrifying things crossed through my mind.  If it was something big, I'd feel the water move, right?  Right?

As the sun burned off the last of the fog, the dark shape stopped disappearing.  I then realised that I'd been seeing my shadow.  With the sun on my back, I was casting a shadow on the thousands of plankton organisms beneath me.  The shadow was changing shape... because I was moving.  I had literally been scared by my own shadow. :)  (Even more sadly, this had happened before, but it was years ago, and I'd forgotten about it.  Ha.)


11. The Difficulties
I’ve experienced nausea in the past,and have developed a pretty reliable plan for dealing with it.  As I swam along, I became aware that I was inventing reasons for breaks.  I slowly realised that my breaks were a chance to be upright, which seemed to give my stomach some relief. 

I had some Gravol Ginger Chews, which were very helpful for dealing with the nausea.  I switched my feeds to gingerale.  Over time, though, my stomach started feeling hard and tight.  It got really, really hard to be horizontal and tipping on two axes. My crew posted news of my nausea on facebook, and I received encouragement from two former students of mine.  :-)  Alyssa told me I’d taught her to take a break and try again later.  I tried doing a bit of one-armed backstroke and stretching out my stomach, which helped a lot.  Kennedy sent the message that I'd taught her not to give up, not even when things got really hard.  I held back the tears.  It's very hard not to be moved hearing your former students explain how you've helped them, and having them support you.  Emotionally, at this point in the swim, I was pretty raw.

My brain was slowing down.  This can happen after you've swum for a long time, especially when you're cold.  I felt like I could think reasonably normally, but I was having trouble articulating myself.  It didn't help that my tongue was swelling with the salt water exposure, and it was physically harder to talk.  My crew later reported they told the captain I seemed a little disoriented.  His response?   "Yep."  My boat captain had seen me through some really rough swims, and he knew I had a while to go before I hit rock bottom. :)

I ended up puking a couple of times.  I sort of laugh whenever I puke, because my immediate reaction is always, "Oh my god.  How many carbs did I just puke up?  Who the heck tries to carb count vomit?"  Diabetes is pervasive.  If can't take in enough carbs to match your insulin, you have an urgent situation.  When I was first diagnosed with diabetes, you were supposed to go straight to the ER if you vomited.  Fortunately, diabetes management has advanced enough that it can often be managed without professional intervention...  even in during a marathon swim. :)  I turned my pump off for 30 minutes to decrease the amount of insulin in my body.  At this moment, Stacey Van Wart became my hero.  She has Type 1 Diabetes as well.  Two weeks prior, she finished her swim across the Northumberland after puking for four straight hours, and having her insulin pump fail mid-swim.  I tried to summon her inner strength.  I had my crew toss me a tiny bottle filled with gingerale, and I started taking tiny, tiny sips every couple of minutes.  My stomach settled.

Every time the going got rough (when I was feeling especially down, or when I was feeling particularly ill), the porpoises would appear.  Care-taking behaviour has been observed in dolphins (helping struggling swimmers and other animals, protecting swimmers against sharks).  I wondered if the porpoises were there to help me.

I started getting desperate, and asked "How much further?" waaaaaay too often.  My captain was terrific the entire day, but really shone here.  He knows just how to lie to me. :)  I cried.  We kept going.  :)


12. Almost There?
Eventually my crew reported that they could make out the windows on the houses.  I could see the red clay of PEI, and I wanted to get there really, really badly.  I wanted to have that magical experience when you think, "Oh my god.  Is that the ground?  Oh my god.  I think that's the ground.  Oh my god, oh my god, oh my god!  Oh my god, I see rocks.  It's getting shallower.  Oh, dear god, let me make it before a rogue tsunami yanks me back into the middle of the Strait."  I visualised wading ashore and picking up rocks and shells, as is tradition with marathon swimmers.  It wasn't meant to be.  It was, as marathon swimmers say, a tough day at the office.

The wind changed direction again.  It was now pushing me directly away from land.  Although the wind had only been scheduled to blow 15 knots, the forecast had changed to blow 30.  We would be facing gale-force winds, and we weren't close enough to shore to avoid them.  We continued fighting the tide, but it was like running on a treadmill.  We continued to fight until I started drifting backward, even when I was sprinting.  I lost 200 meters (219 yards) testing my blood sugar.  I cried some more, and the porpoises came back.  There was nothing more I could do.  The porpoises swam all around me and under the boat as the captain helped me climb the ladder.

My crew took amazing care of me after the swim, and helped me get dressed.  They truly went above and beyond, and I am so incredibly grateful to them.  Marathon swimming is truly a team sport.  I couldn't have gotten through the day without them.  Folks on who commented on facebook and sent me text messages: your support was incredible.  You'll never know how much you helped me.  Your love really did make me feel warm!

I hurt after the swim, but not the way I expected.  My non-working arm was the sorest thing on my body!  What the heck?  It hadn't done anything other than float along all day!  I guess the movement irritated it, though.  My quads and knees were both pretty shot.  My left shoulder is a little tired, but it doesn't hurt anywhere near as much as I expected it to.  This alone gives me great hope. :-)

Today, in PEI, the surf is so dangerous that Parks Canada is advising individuals to stay out of the water.


13. Did I Fail?
Hellz no.  I didn't fail at all.  :-)  There's no way failure can feel this good.  :-)  This has been a four-year journey for me.  I swam for 10 hours and 42 minutes, persevering over my diabetes, over the cold, over hours of nausea, and over vomiting, all while swimming with one arm.  That's pretty awesome.  Under different conditions, I'm sure I would have made it.  The longer and more challenging a marathon swim is, the more susceptible it is to tides, weather, and rogue tsunamis.  Marathon swimming is all about facing the significant chance of not reaching your goal, surrendering to the day, and letting Mother Nature have her way.  That's just how it is. I didn't swim to PEI yesterday.  I still won, though.  :-)

The game *really is* all about finding your porpoises in life. :-)


14. My Amazing Diabetes Control
My blood sugars were AMAZING.  Amazing enough that you might even be tempted to think it's easy.  It's *not even remotely easy*.  US blood sugar units in brackets.

I started off with a regular lancet, but had to switch to deeper, disposable lancet blades during the swim.  The cold was making it hard to draw blood.

While I swim, my target range is 5-8 mmol/L (90-144 mg/dl).

06:50 - 6.3 (113) - 30 grams of carbs - 140% temp rate
07:23 - 7.6 (137) - 1 gram of carbs (low-calorie electrolyte solution) - 140% temp rate
08:00 - 10.7 (193) - 0 grams of carbs - 170% temp rate
08:30 - 8.9 (160) - 8 grams of carbs (shot of liquid Tylenol) - 170% temp rate
09:00 - 3.8 (68) - 40 grams of carbs - 160% temp rate
09:40 - 7.5 (135) - 30 grams of carbs - 160% temp rate
10:10 - 6.7 (121) - 30 grams of carbs - 150% temp rate
10:40 - 5.4 (97) - 15 grams of carbs/15 grams 15 minutes later - 100% temp rate
11:10 - 5.1 (92) - 15 grams of carbs/15 grams 15 minutes later - 80% temp rate
11:30 - 5.6 (101) - 15 grams of carbs/15 grams 15 minutes later - 70% temp rate
12:15 - 6.1 (110) - 15 grams of carbs/15 grams 15 minutes later - 70% temp rate
12:50 - 6.3 (113) - 15 grams of carbs/15 grams 15 minutes later - 70% temp rate
13:20 - 5.7 (103) - 15 grams of carbs/15 grams 15 minutes later - 70% temp rate
13:50 - 5.2 (94) - 15 grams of carbs/15 grams 15 minutes later - 70% temp rate
14:20 - 6.7 (121) - 15 grams of carbs/15 grams 15 minutes later - 70% temp rate
15:00 - 5.7 (103) - drank 27 grams carb (gingerale), puked some back up - 70% temp rate
15:30 - 5.2 (94) - 10 grams of carbs over 15 minutes (gingerale) - 0% temp rate for 30 min
15:45 - 4.5 (81) - 14 grams of carbs/14 grams of carbs 15 minutes later (gingerale) - 70% temp rate
16:20 - 4.8 (86) - 14 grams of carbs/14 grams of carbs 15 minutes later (gingerale) - 55% temp rate
17:00 - 6.6 (119) - 14 grams of carbs/14 grams of carbs 15 minutes later (gingerale) - 55% temp rate - 55% temp rate
17:30 - 8.0 (144) - 0 grams of carbs - 55% temp rate
17:35 - end of swim

Tuesday, August 27, 2013

I wish the hormones were as temporary as the basals.

It's the last week of the month, and that means two things

1) I mourn quietly inside me that the darkness of winter is coming. I am saddened by that. Nothing makes me happier than warm sun. I hate winter. With a passion. Nothing about it satisfies any part of me, unless there is such a huge snow storm that it shuts the whole city down (because that's the only way I get a day off.) And thanks to all my predecessors insisting on CFCs and spray can cheese, I can safely say that those snow storms never happen any more. Anyway, yes, summer is nearly through. I won't have to face winter until Fall is done. And I do love fall. I love it so much. It would be my favourite season if Winter didn't follow it, but it gets the bad rep because I HATE WINTER. the older I get the more I wish to hibernate and never see a flake of snow. Perhaps time to move to Texas, or Arizona.

2) It also means that no matter what, my insulin resistance has bounced so high I have lost sight of it in the final rays of the summer's sun. Since Saturday I have been running at least 100-150% temp basals, dropped my carb ratio in half and have corrected via syringe. It's getting to be a real hassle, my head hasn't stopped pounding so bad that I can taste colours since Sunday, and I am bloated and hungry. Always. Perhaps the hunger is hormonal, perhaps it's in retaliation to the MASSIVE amounts of insulin I am taking (I mean, I am talking about a daily pump refill, which is NOT normal for me. I need to get in to my endo to discuss this. It is so noticeable that my normal 7 day average in the month of august was 6.2 and for the past 4 days it is 11.9.  I have taken my Dexcom off since I can't deal with the emotional strain the numbers take on me, when I see them all the time.

Oh, is it Friday yet?


Wednesday, August 21, 2013

Monday, August 19, 2013

Lift Heavy Stuff

I've tried running.
I've tried walking.
I've tried (and do enjoy) riding my bicycle, but don't do it enough.

I find cardio drops my blood sugar too fast, even without my pump connected, that it ends up not being worth it because I have to consumer so many calories after. And yes, I have tried every drink, bar, meal, time of day...it kills my sugar.

Then I signed up with Ali over at  InsulinandIron. She has her life revolving around lifting heavy things. When she is asked what she does for cardio she says she lifts her heavier things faster. And it works. When we do the conditioning part of my workout, my heart is pounding and I am ready to pass out.

So recently, I read this article: Lifting Weights May Help Diabetics Keep Blood Sugar in Check

And then this happens once I lift things regularly:


So I have to say I agree.

What about you? What works for you?

Wednesday, August 14, 2013

Of insulin and heroes

Today I have taken a total daily dose of 94 units. I have only eaten 36 grams of carbohydrate.

94 units will usually cover me at least two days, so what gives?

Something happened in my body at 12am this morning. I don't know what, but my body just decided today was not a day it felt like absorbing insulin.

I cranked a temporary basal up to 150%, I corrected, corrected and then corrected again. I walked a few blocks at a super fast pace & changed my cannula. I drank three litres of water, I did not eat a bite (despite really wanting to!)

It was just....one of those days. I can't sleep when my sugar is high. A lot of people tell me that's all they want to do, but I get short of breath, I need to pee and my bones start to ache when my sugar goes up. So, yeah i didn't sleep well last night.

As I was sitting on the bus this morning, my pump told me I have a low cartridge. At the rate I was going through insulin I was worried. I usually have an extra bottle of insulin around at all times, but for SOME reason WHEN I DESPERATELY NEED IT, I didn't have one.

I had to put my tail between my legs and call on T. to bring me one from home. He wasn't overly impressed but barely said a word since well..I need it. It's not like I could go buy another since I just had it filled (and my pharmacy is super far from work anyway) and I couldn't just...go without. I am so thankful he is so supportive.

My co-worker asked me what I would have done if he wasn't here/at work. I began to list a number of people I could have called for an emergency pump fill (my real life diabetes community), but it all would have involved a lot of traveling around the city on my limited time, not to mention....for some reason NovoRapid isn't widely prescribed here and I would have been using Humalog...not that it really matters to me. Ultimately I would have gone home if need be, but I didn't want to skip out of work when I am so extremely busy..

So yeah, I am thankful that my sugar is now 5.9 (as opposed to the steady 15-19 I was running all night.) I am thankful to have a superwonderfulawesomeamazing partner who barely flinched when I was in need (yes, he does read this blog and no i didn't say that just because he reads), and I am also thankful that I had backup to my backup.

Wednesday, August 7, 2013

First Day

Today I had my first session of hopefully many with a kick ass new trainer/friend. Her name is Ali and she blogs about her life at insulinandiron.wordpress.com

So I will back up a little bit. I met Ali first at our JDRF Walk in June, albeit briefly. She was there with her kickass supportive boyfriend and seemed very sweet. Anyone who was going to volunteer for JDRF is good in my books. Then, on Thursday past we met again at our T1 Dish and Dine event (a meet up for adults living with T1/LADA.) We chatted over hot dogs and french fries, she is a very warm person, so I was totally comfortable in talking to her about her career.

Here's how our convo went:

Me: "So what do you do?"
A: "Oh, I am a fitness instructor"
Me: "Awesome. So where do you do that?"
A: "Stadacona" (in Halifax talk: that's the military base.)
Me: *jaw drop*

That's a totally bad ass job. Training military dudes must not be easy. A lot of them are in elite physical shape, so she must be to keep up with them. As the evening went on, I also learned that she is running a 10K in Reykjavik, Iceland in support of the Canadian Diabetes Association. So I pretty much love her now. Especially after learning she is just past her 1 year diaversary and is taking everything with a grain of salt. Her outlook on life is amazing! A lot of people initially feel very defeated by diabetes, but not her. I think it has a lot to do with her kickass boyfriend (from what I gather and the short time I met him) being a quadriplegic, helping her perspective and "poor me" attitude sort of slide.

So I mentioned how I have been needing the extra push and help with training and she told me anytime. The next day I had her booked for tonight.

I was definitely more excited than nervous. I have been to trainers before, and to have someone who knew exactly what I felt like when working out, blood sugar-wise was so so important to me. She is totally the type of person I need at the gym. Not someone yelling at me, or drilling me. I don't like group classes, or running on a treadmill and I am bored by fitness machines. Being fat at the gym is hard work mentally, physically and emotionally and she seems to get that. I did things that were extremely hard and rewarding. I really, really want to do things right form-wise so they are the most beneficial to my body and my mind. I took all of her advice in, and asked a lot of questions.

I feel good after it all. It was nice to sit down with her after everything was done and be able to check my blood sugar, and have her toss me dex tabs when I needed them. My basal adjustments will have to be tinkered with, and that's ok too. She is giving me tips of bolusing and basals according to the type of exeercise I do and I totally trust what she is saying vs. someone without diabetes. Having her next to me, holding my Dexcom while I work out, ready to tell me when I am headed south bgwise is just what I need to get over the anxiety of being low, and replenishing too many calories I am working hard to burn off.

All in all it has been a very positive experience. Thanks, Ali. I definitely will be booking you again asap!

Tuesday, August 6, 2013

A Loud Silence

Have you ever heard, or said, the saying the silence was deafening? It sounds bizarre until you sit in a completely silent room or area and realize that just the energy from items or the world around you makes an almost undetectable sound.

As I was sitting, waiting, hoping my glucose tabs would start to work today I realized the whole body numbness I feel during a low blood sugar isn't a numbness at all. It's equivilant to that really loud silence.

My body isn't numb when I am low. It's almost like I can feel the blood being pumped through me.

It was one of those moments that when you are sitting in it and thinking "I'm going to blog about this" it seems brilliant. But then I try to type it out and explain what I was thinking and realize it doesn't make sense.



Just like a low blood sugar!

Sunday, August 4, 2013

Packing with Diabetes


I am not known to pack light, but I am usually the person that forgets key clothing items like a sweater, jeans, socks etc when I travel.

How is this possible you think?

Well for one I always pack about 35 seconds before my planned departure time because I am THAT organized. And secondly, my main focus, always, is making sure I have enough medical supplies in case anything happens: ANYTHING. I pack: glucagon, two vials of backup insulin, box of strips, twice my infusion sets, batteries, glucose tabs, sticky pads, reservoirs, syringes etc.

My biggest fear is running out of supplies. Maybe it's some sort of anxiety,  because I know I overpack. But I am just the person that something would happen if I forgot an item.



You wouldn't believe that I am only visiting my parents 400km away for the weekend would you?

Did you know Life on T1 is now on Facebook? Keep up to date with posts there, as well as other diabetes news and events.