Monday, May 13, 2013

D-Blog Week: Day One



This week I will be participating in Diabetes Blog week. For more information on what that means please visit Karen's Blog here. It's going to be a big challenge for me since I have been busy with the rest of my life, and my blog has unfortunately taken the back burner for my JDRF Fundraising and my buying a house.

Anyway, on with this week's topic:

"Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one's daily life with diabetes? On the other hand, what do you hope they don't see?  (Thanks to Melissa Lee of Sweetly Voiced for this topic suggestion.)"

I am so disjointed from my medical team. I couldn't tell you my nurses name to be honest and my endocrinologist barely speaks when I am there because I am often seen by untrained, and VERY un-knowledgeable (not a word, don't even care. irony!) interns. Because I am fat, it is automatically assumed I am a Type 2 diabetic, so I usually spend a few minutes clarifying this information to the intern. Then I will sit down they will tell me I have to lose weight, at which point I will address my doctor and explain what I have been doing exercise wise, and that my nutritionist is impressed with my food diary. I will remind my endocrinologist that 7 years ago she felt I had cushings syndrome due to my body composition, my hormone levels and my inability to lose weight despite an active, healthy lifestyle. She will then take a few minutes to explain to the intern what exactly I was tested for and how we don't treat the cushings because I was borderline.

So, I wish my health care team could see all the work I do. I don't blog enough about this work because my blog is usually read by other people with diabetes. They know how much work I do because they do it too. But I wish I got a little recognition and understanding from my team. My doctor doesn't even know that my A1C has dropped from 8.9 to 6.2 because the wait list to see her is 12-18 months (this Canadian health care system ain't all it's cracked up to be ;)) and I am taking self-monitoring to a whole new level.

I wish they would read the support I get from this blog and the ideas we bounce off each other. I truly feel that this online community has helped me answer some really tough questions when my doctor and health care team just isn't there.

I don't have anything on this blog I wouldn't want them to read. I want them to know all of the work I am doing and all of the support I am getting in the comments. I would encourage them to read everything word for word and open their mind to learning from other PWDs like I did. We do our own research and we are good at it.

4 comments:

  1. I think I would want to do some not so nice things to that Doctor. That's so unprofessional that you have to tell her your history everytime and on top of that, deal with an intern. Is there any way you can switch endo's?

    The wait isn't that bad here in Alberta it's more like 6-9 months. My endo only works 1 day a month at the Diabetes clinic so I have to really be on the ball making my appointments or the wait turns into 12-18.I only ever have contact with my endo during my appointment. The rest of the time I talk to my CDE.

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    1. It's a pretty common complaint with this endocrinologist..the havign to repeat your medical history. She is very nice and polite but she still sometimes uses terms like brittle diabetes. I have tried to switch endos and was unsuccessful. I may have to try again soon.

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  2. So well said!! I'm proud of all of the hard work you put in and of that awesome drop in A1C!!

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  3. This is the kind of endo visit where you wonder why you bother to go! Wish there was a magic wand to make good dr's out of bad.

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