Monday, May 13, 2013
D-Blog Week: Day One
This week I will be participating in Diabetes Blog week. For more information on what that means please visit Karen's Blog here. It's going to be a big challenge for me since I have been busy with the rest of my life, and my blog has unfortunately taken the back burner for my JDRF Fundraising and my buying a house.
Anyway, on with this week's topic:
"Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one's daily life with diabetes? On the other hand, what do you hope they don't see? (Thanks to Melissa Lee of Sweetly Voiced for this topic suggestion.)"
I am so disjointed from my medical team. I couldn't tell you my nurses name to be honest and my endocrinologist barely speaks when I am there because I am often seen by untrained, and VERY un-knowledgeable (not a word, don't even care. irony!) interns. Because I am fat, it is automatically assumed I am a Type 2 diabetic, so I usually spend a few minutes clarifying this information to the intern. Then I will sit down they will tell me I have to lose weight, at which point I will address my doctor and explain what I have been doing exercise wise, and that my nutritionist is impressed with my food diary. I will remind my endocrinologist that 7 years ago she felt I had cushings syndrome due to my body composition, my hormone levels and my inability to lose weight despite an active, healthy lifestyle. She will then take a few minutes to explain to the intern what exactly I was tested for and how we don't treat the cushings because I was borderline.
So, I wish my health care team could see all the work I do. I don't blog enough about this work because my blog is usually read by other people with diabetes. They know how much work I do because they do it too. But I wish I got a little recognition and understanding from my team. My doctor doesn't even know that my A1C has dropped from 8.9 to 6.2 because the wait list to see her is 12-18 months (this Canadian health care system ain't all it's cracked up to be ;)) and I am taking self-monitoring to a whole new level.
I wish they would read the support I get from this blog and the ideas we bounce off each other. I truly feel that this online community has helped me answer some really tough questions when my doctor and health care team just isn't there.
I don't have anything on this blog I wouldn't want them to read. I want them to know all of the work I am doing and all of the support I am getting in the comments. I would encourage them to read everything word for word and open their mind to learning from other PWDs like I did. We do our own research and we are good at it.