Tuesday, October 9, 2012

RFP** for a doctor

It's officially fall, folks. Chilly dark mornings with lots of layers.

This fall I am in need of an appointment with my endo. I will preface this by saying: my last visit to the local endocrinology clinic was ABYSMAL. I waited 4.5 hours to see my endocrinologist who had an incredibly ignorant student with her, and paid little attention to me. I lost a half days of work and was basically just told to lose weight because my diabetes was "brittle". Despite my teary visit previous, I called the office, and was promptly (and rudely) told that there is a 6-9 month waiting list. I expressed my displeasure as I had been there in April and was sent for some tests and was asked by my endocrinologist to come back in 3 months. I was also told that my CDE (nurse) was away for a year and was replaced temporarily by someone with whom I have no repertoire. I have yet to find a family doctor with whom I feel comfortable. The one I found recently is on many international panels for Type 2 Diabetes. I thought it would be a great fit. But my questions to him about treating my T1 ended up with a puzzled look on his face. He then told me he doesn't do pap tests and I would have to find another GP to do those tests on me. Back to the drawing board.

In light of all of this, I contacted another diabetes clinic (no endocrinologist, but others on staff), after three calls being returned to me asking me what exactly I want, and being told I will get followed up with. I have given up on trying there too. I am not sure how to explain what I want. I want support, I want to be followed up with. I want someone to look at these thyroid, A1C, and hormone tests and tell me what they mean. I want advice on how to combat my dawn phenomenon without starving myself. And advice on how to micro adjust my night time basals so I don't have to eat almost every night which is making losing weight IMPOSSIBLE. I want someone to tell me they are LISTENING and TAKING ACTION.

I am reaching out in every way possible. I am accountable for every gram of carbs I put in my mouth and exercise 3 times a week at least, I check my sugar 10-12 times a day, I am doing my part. I want someone else with expertise to do theirs.

I am considering putting an RFP** out for a doctor. I would LOVE to have a doctor who actually cares about his/her work so much that they can tell me what they can do for me. It's not hard.

At least I didn't think it was...


**An RFP is a 'request for proposal' in which businesses will bid for clients through clearly explaining how they would complete the project requested in a certain timeframe and budget. It's most commonly used by government departments, but some private clients use it as well.

8 comments:

  1. Yup. This is why I haven't put any effort into finding a better endo after switching to you-know-who about 5 years ago. It was an out-of-the-frying-pan-into-the-fire kind of situation, and since I've never heard anyone rave about their endo experience in Nova Scotia, I don't think the dream doc is really out there.

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    1. I know you know all too well about this, since we are in the same situation. I just...I don't know I could have another disease and nobody seems to give a shit.

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  2. The first time I felt like I was being 'listened to' was during visits to was during visits to see a Naturopathic dr or Holistic Nutritionist! Give it a shot.

    Yes you'll still need to find a dr for paps and and to order blood work but they are great to examine things in a new light!

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  3. Alanna, I'm going to give you the advice that I give everyone looking for an endo/appropriate diabetes doctor. Call up Animas, either your local rep or the regular toll-free number (who will put you in touch with your local rep). Your local rep likely knows all the doctors in the area, and should be able to tell you which ones are particularly adept at working with your pump, as well as those whose offices are organized and work well with patients. Then try to get an appointment with the doctor that your rep recommends.

    I found my current endo through a Medtronic rep, and through this new doctor I learned so many things about my pump that I never knew (both in what I can do with it, and in what information it stores and can give me). He's the best diabetes doc I've ever had, bar-none.

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    1. This is the best advice I have ever received on this topic. I actually know my rep quite well and will be at JDRF family camp with him next week. I will corner him then!

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  4. What a mess. I'm sorry. Scott's advice is awesome.

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    1. I am so determined, that this is just adding fuel to my fire! Haha. Thanks for the kind words.

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  5. YES!! You're talking my language! (and yes, I do procurement for the government). I would even suggest a scored interview as part of the process! I would love to see the tables turned on health care teams and force them to take a look at themselves and quantify their value to their patients. I would love a doctor to say, "I want YOU to want ME!!!" -Cheap Trick live at Budokan reference ;)

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